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#patient

2 Beiträge2 Beteiligte0 Beiträge heute

I teach undergrads at a prestigious programme in a research university. Most of my students don't know how to copy a file from a folder to another on their computer. I teach computer-based skills and it's often a source of grief and self doubt to these able, confident, well off young people. On a few occasions, of tears.

My mother, disabled and with a mental health condition, has dropped out from her #cancer treatment because she wasn't able to get through the ticketing system at the reception of the hospital. She lived in the capital, had a caring daughter available on the phone, and a network of support.

I just got a glimpse of the #autism treatment in the #Netherlands, a progressive country with high digital literacy. Autism diagnosis requires a referral from a GP, but the GP does not necessarily know much about autism and autism treatment centers are extremely specific about what needs to be mentioned in the referral. I am told that many autistic people have difficulty making phone calls. The autism diagnosis and treatment facility can only be contacted by phone. The waiting time for appointment is 30 weeks and, when the appointment takes place and your case turns out to differ in any way from what your uninformed GP has written in the referral, your case gets rejected and you have to get a new referral and start again. The GP could get instructions from the treatment center via a dedicated system called zorgmail, but neither side knows how to use it. If you manage to log into the online appointment system that is, which does not work and has no contact information to any support. I, a numerate computer nerd who enjoys puzzles, needed three days to crack it.

What is this micro-blog about?

☠️ #uxdesign saves lives ⛑️

🏥 #uxdesign should be obligatory in the process of #patient intake and journey 💉

👧 Digital medical services should be accessible to teenagers with confidence issues and elderly people terrified by a terminal diagnosis. 👴 🤰 👨‍🦯

We're In This Together!

Renegade Research is on a mission to help people manage and recover from #MECFS and #longCOVID. It is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research with a focus on ME/CFS, longCOVID and other infection associated chronic illnesses.

Remission Biome is a project of Renegade Research.

✅️ Learn more: renegade-research.org and remissionbiome.org

#clinician#chronic#illness
Fortgeführter Thread

Alexis McGill Johnson, president of Planned Parenthood Federation of America, said buffer zones are necessary to ensure safe #access to #health-care centers.

“No #patient should have to encounter #threats, #intimidation, & #attacks while seeking #healthcare — & no #medical provider or health center staff should be threatened because of their work to deliver #abortion care to patients in need….Buffer zones & bubble zones help to create a safer environment for patients, providers, & staff.”

Ce soir, à 20h30, au Forum des images (Paris) :

AvP : Sauve qui peut (2024)
(en présence de la cinéaste, projection suivie d’un débat)

★★★☆

Immersion dans le milieu médical où les jeux de rôles forment les thérapeutes de demain.

✍️ La suite ici :
senscritique.com/film/sauve_qu

🎟️Infos / Résa :
forumdesimages.fr/avant-premie

🎫 Au cinéma le 04/06/25

Unser #Gesundheitswesen ist sehr komplex. Dadurch ist es einerseits schwierig, sich zurechtzufinden, aber andererseits auch, gute #Gesundheitentscheidungen zu treffen.

Eigentlich sollten Praxen, Kliniken, Apotheken etc. individuelle Entscheidungen erleichtern. Doch das klappt oft noch nicht so gut. Womit hat das zu tun? Und wie könnte es besser werden? Die Expertin Eva-Maria Bitzer hat Antworten.

(€) riffreporter.de/de/wissen/inte
#Medizin #Gesundheit #Arzt #Patient #Klinik #Apotheke #Praxis

Fortgeführter Thread

Unser #Gesundheitswesen ist wie man sieht, sehr komplex.

Im europäischen Vergleich schneidet es deshalb seit Jahren schlechter ab als andere, wenn man Patient:innen fragt, wie gut sie sich zurechtfinden.

Das Problem haben Fachleute natürlich längst erkannt und es gibt auch Vorschläge, wie sich das verbessern ließe.

(€) riffreporter.de/de/wissen/arzt

RiffReporter · Arzt, Klinik, Krankenkasse: Gesundheitswesen kaum zu durchschauenVon Iris Hinneburg
#Medizin#Gesundheit#komplex
Fortgeführter Thread

More on #MedevacPlane #crash

A medevac #plane crashed in #Philadelphia on Fri w/a #child & 5 others on board, the air ambulance company that operated it said, adding that it had not confirmed any survivors.

Jet #Rescue Air #Ambulance said its #aircraft crashed w/4 crew members, 1 #pediatric #medical #patient & the patient's escort on board.

"At this time we cannot confirm any survivors," the company said.

#MedicalTransport #AirSafety #FederalAgencies #FAA #Trump
reuters.com/world/us/small-pla

Antwortete im Thread

What is Hormone Replacement Therapy? (Download and archive this video.)

A hormone is a chemical messenger made by your body to send signals to some or all body cells. Some hormones are made in other bodies or through chemical processes, like other medications.

HRT is a medical treatment for certain conditions, including menopause for some people, or precocious puberty for others.
(Mostly) Older men and women also use it to affirm their gender experiences.

HRT has certain side effects on your body. You may find these desirable or unpleasant.
Any medical intervention can have therapeutic effects and side effects. Different people experience different outcomes.

Do you want or need to biohack your hormone levels to affect your body?
Please learn more from your GP, family doctor, primary care provider, or another trusted clinician with access to your personal medical records.

Some of the waiting lists can be quite long, or involve more steps than you may expect. So ask early, please!

nebula.tv/videos/lilyalexandre

NebulaLily Alexandre — DIY Hormone Therapy: Everything I Can Legally Tell YouAs trans healthcare bans spread across the globe, people are taking matters into their own hands by using unprescribed hormones bought in secret. Here's what you need to know.
#trans#TransUK#transgender
Antwortete im Thread
@ulrichkelber @chbmeyer Warum darf der #Patient nicht entscheiden wer was zu sehen bekommt, anonymisiert oder nicht? Warum wird den #Menschen hier die #Selbstbestimmung aus der Hand genommen und die #Politik als de Faktor #Betreuer vor die Nase gesetzt? Es sind die sensiblen #Daten der Menschen und darum sollten nur sie entscheiden was damit passiert. Darum #ePA in der jetzigen Form ein absolutes #OptOut.
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